Friday 5 January 2018

4 January 2018 - Neurosciences Outpatients Department, QE Hospital

Today's visit was to review the results of Deb's MRI Scan on 30th December 2017 (her 44th)

THE SCAN RESULT WAS BAD NEWS!

The tumours had progressed.  The growth is slow but is happening,  We discussed three options with Dr Sanghera.

Option 1

Do nothing and have another scan in 2 months time.  Deb is well at the moment and tumour growth is slow and we could wait a couple of months before starting treatment.  During this time Deb could consider the course of action she wanted to follow.  However, we feel this just delays the decision and we will consider the other options now.

Option 2

Start Chemotherapy again. Dr Sanghera was particularly disappointed that the tumours had started to grow so soon after stopping Chemotherapy.  This demonstrated that the last course of chemo. was not as effective as when first used. The  new chemotherapy treatment would involve PCV.  Deb has had this previously.  PCV is a combination of 3 drugs, one of which is administered intravenously in hospital.  It is an older chemotherapy drug and more aggressive than Temozolomide.

Option 3

Surgery. Another brain operation to remove as much of the tumours as possible.

Deb's case will be discussed at the Multi-disciplinary Team Meeting (MDT) on Tuesday 9th, Dr Sanghera, Mr Kay (Surgeon) and the Radiologist will be present at the meeting.

The CNS Nurse will contact us on Tuesday afternoon to let us know the outcome of the meeting. I will post again then.

This was very disappointing news for us.  In the that past, Dr Sanghera has always given us the best advice and Deb will be guided by him.

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