Monday, 30 November 2015

26 November 2015 - Neurosciences Outpatients Dept, QE Hospital


Deb in Dubrovnik, September 2015


It is over 6 months since I last posted. During that time Deb has had two more MRI scans (32nd and 33rd since her radiotherapy treatment).  The results of both these scans were good, with no visible change in the tumour detected. We saw Dr Sanghera and Fred who were both very relaxed.  It is now 7.5 years since Deb was diagnosed. It is very, very unusual for patients with a glioblastoma brain tumour to survive this long. Usually the radio/chemotherapy stops the tumour growth for a short while but cancer growth soon returns. The path taken by the disease with Deb has been different with no progression after her debaulking operation. Dr Sanghera said there were no medical protocols for patients who have lived this long. However he has suggested that the period between scans could now be increased to 4 months initially and provided there was no change in the tumour this period eventually could be extended to 6 months. Deb was really buoyed up be this news. if the doctors are getting more relaxed then so can we.

It seems pointless for me to keep putting up blog after blog saying nothing has changed. So I propose that from now on I will not put up any futher posts until there is something to report.

Have a merry Christmas and a happy new year. Chris